Hello everyone, I’ll be hosting the megathread while un_mask_me is out.
I completely forgot I had to post it until just now.
As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
“Disability” is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
I got the results of my scan for the shockwave treatment today. The damage to my leg and ankle is even more extensive than first thought. And they said they need to do another scan to do the foot because they think the damage extends further into the foot. The appointment for that scan in on Wednesday then I’ll hear when the shockwave therapy will begin. But this will be more expensive and eat into the donations I was given for the shockwave therapy. I’m also not having much luck getting donations for my transport situation. I need £400 and received a total of £61, which I’m grateful for of course, but because the car isn’t fixed and I had a hospital appointment today I had to spend £24 of it getting taxis there and back. I have another hospital appointment in a hospital the next town over tomorrow, I’ll have to use the rest getting a taxi there and back. That puts the fund for the car repairs back down to zero and means I still have no transport to my future hospital appointments. What am I going to do? You have to pay for hospital transport anyway and it’s too late to book it for my next upcoming appointments. I’ve already had to cancel an endocrinology appointment because of this. Why does everything always have to be so difficult and expensive?
I wish they would just legalise assisted suicide here. I hate the hypocrisy of them claiming they care too much about us to let us die, while they don’t care enough to make sure we can access enough food and medical treatment.
they’re like, “we care about you sosososo much that we’ll allow you to suffer to death! isn’t that awesome!”
i think people, especially non-disabled people, have this weird thought that being alive is fundamentally better than being dead and i dont really get it!!
It’s a sure sign that they have never truly suffered horribly long-term. Absolutely no idea what endless torture feels like, and no empathy.