• nothx [he/him]@hexbear.net
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    6 days ago

    Im sorry comrade. I can’t say I understand because I’m not experiencing it first hand, but I can empathize.

    My partner is in the midst of a diagnosis for an autoimmune disease. She’s spent the last 3 years dealing with unexplainable symptoms, having doctors doubt her because of her age, friends and family minimize her situation and complain about accommodating us. It’s so mentally and emotionally exhausting having to explain ourselves at every turn, even to the people who should just provide unconditional support.

    People really can’t or won’t make the connection. Even if they do, they find a way to be ignorant and try to explain it away so that they don’t need to adjust their own behavior or expectations.

    • DisabledAceSocialist [comrade/them]@hexbear.netOP
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      6 days ago

      Sorry to hear that. It’s very common, especially with female patients. It took them three and a half years to diagnose my cancer because they refused to do any tests. They said I was “too young for it to be anything serious,” then when the symptoms didn’t resolve, diagnosed me with depression and gave me antidepressants and when those didn’t work said I was a hypochondriac. And people I know, at first were shocked by my diagnosis, but as time wore on and the shock wore off, they got bored of my problems and drifted away, leaving me with no support.

      they find a way to be ignorant and try to explain it away so that they don’t need to adjust their own behavior or expectations.

      I’d never thought about it like this before, but that does make a lot of sense.